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resources

ibd organizations

Athletes vs. Crohn's | Website 

Connecting to Cure Crohn's & Colitis | Website 

Crohn's and Colitis Foundation of America | Find a Local Chapter 

Girls with Guts | Website 

International Ostomy Association | Website 

The Great Bowel Movement | Website 

World Gastroenterology Organisation | Website 

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HEALTHCARE organizations

American Chronic Pain Association | Website 

American College of Gastroenterology | Website 

American Gastroenterological Association | Website 

American Society of Colon and Rectal Surgeons | Website 

International Foundation for Gastrointestinal Disorders (IFFGD) | Website

North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN) | Website 

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support groups
Crohn's and Colitis Foundation of America Support Groups |  Find a Support Group
Connecting to Cure Support Group (Los Angeles) | Website
Daily Strength |  Website 
IBD Support Foundation | Website 
Power of Two Peer-to-Peer Support Mobile App  |  Source: Crohn's & Colitis Foundation
The American Chronic Pain Association Support Groups | Website 
United Ostomy Association of America Support Groups | Find a Support Group
 
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find an expert
American Chronic Pain Association | Website 
Center for Disease Control and Prevention | Website
Crohn's and Colitis Foundation Healthcare Professionals |  Find a Doctor
 
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for adult ibd patients

Tips for Intimacy when you have Crohn's  |  Source: Everyday Health 

Tips for taking plane trips with Crohn's  |  Source: Everyday Health 

Influences and Impact of Anxiety and Depression in the Setting of IBD  |  Source: IBD Journal

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for youth ibd patients
 

Organizations

About Kids GI | Website 

GI Kids | Website
Just Like Me IBD (CCFA)
 | Website

The Foundation for Nutrition and IBD in Children | Website

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Youth Camps

Camp Oasis | Find a Camp

The Painted Turtle | Find a Camp 

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Books 

Toilet Paper Flowers, A Story for Children About Crohn's Disease by Frank J. Sileo, PhD |  Available on Amazon

 

Misc.

Common Coping Styles of Teens Who Are Chronically Ill or Disabled | Source: American Academy of Pediatrics
The Stresses Faced By Teenagers Who Are Chronically Ill or Disabled Source: American Academy of Pediatrics

 

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FOR STUDENTS

Scholarships

Abbvie Immunology Scholarship | Website 

Athletes vs. Crohn’s & Colitis Scholarship | Website

PAF's Scholarship Program | Website

180 Medical College Scholarship Program (For Ostomy Patients) | Website

 

 

for ostomy patients

Friends of Ostomates Worldwide | Website 

International Ostomy Association | Website 

J-Pouch Group | Website 

Ostomy Home Skills Program | Website 

Quality Life Association | Website 

United Ostomy Associations of America | Website 

 

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for caregivers

Organizations

Caregive Action Network (CAN) | Website 

Family Caregiver Alliance  |  Website

The Caregiver Space | Website
Today's Caregiver | Website 

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Scholarships

180 Medical Ron Howell Caregiver College Scholarship | Website

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Support Groups 

Family Caregiver Alliance's Online Caregiver Support Group | Website

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Misc.

How to Help a Friend or Loved One Suffering from a Chronic Illness | Source: American Psychological Association

Caring for a Seriously Ill Child | Source: Nemours Foundation 
Your Child with Inflammatory Bowel Disease: A Family Guide for Caregiving | Johns Hopkins University Press

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volunteer opportunities

Camp Oasis | Sign Up: Crohn's & Colitis Foundation of America

Girls With Guts | Website 

The Painted Turtle | Website 

 

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events
Crohn's and Colitis Foundation of America Events |  Find a Local Event
 
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advocacy opportunities 
American Gastroenterological Association Advocacy Resources | Website 
Crohn's and Colitis Foundation Advocacy Network | Sign up 
United Ostomy Association of America Advocacy Network | Sign up 
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Research & clinical trials
CenterWatch Clinical Trials Listing Service | Website
Crohnology | Website 
Find Me Cure | Website 
IBD Partners  |  Website 

IBD Medication Guide  |  Website 
International Foundation for Gastrointestinal Disorders Clinical Trials | Website 

National Institutes of Health Clinical Trials | Website

Research Match | Website
The Center for Information & Study on Clinical Research Participation | Website

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medical publications & journals

Cochrane | Website 

GUT Journal | Website 

Inflammatory Bowel Diseases Journal | Website 

Journal of the American Medical Association | Website

Journal of Pediatric Gastroenterology and Nutrition | Website 

New England Journal of Medicine | Website

PubMed | Website 

The Lancet | Website 

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